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Channel: Comments on: Sarcoidosis Impacting New Yorkers after 9/11
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By: Jacqueline Kelly

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Hi, I was scanning for any information connecting sarcoidosis and asbestos when I found your articles. I was diagnosed with sarcoidosis over 14 years ago and told I would not get much better. I had chronic low grade plurisy and walking was agony. I was only 28. I tried steroids for 3 wks (prednis) but they did not help. I was prescribed voltarol which I took for a year daily. I gradualy weened myself off voltarol onto bio-selenium and zinc and started to have various natural therapies inc. reflexology and herbalism amongst others. I started gentle exercise and built up my strength riding horses. I discovered this was non aerobic exercise so it was easier on my lungs. Since then i have been working with and exercising race horses, take no medication and dance my socks off jiving every week.

However I do have to work at the balance and have had minor hiccups.

I may have been exposed to asbestos at 7 yrs as my father who brought it home on his clothes from his plumbing job died of asbestosis. I was at home recovering from rheumatic fever after spending 4 months in hospital so I was weak.

My 13 siblings may also have been exposed but perhaps they were stronger. Time will tell.

I believe sarcoidosis may have many causes and triggers. My advice would be get to know your own body and what it responds well to and use any knowledge you can get your hands on to help yourself.

Contact from anyone who thinks I can be of support to them in any way are welcome

I


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